Unusual mini vid tonight!
I have temporal lobe epilepsy (TLE).
I was referred for brain scans and tests and prescribed drugs after having a few grand mal/tonic clonic seizures. But found out I had many petit mal partial seizures.
They can affect me in different ways but don’t appear seizure like to anyone watching. I lose my ability to understand what I see. Or I lose my short term memory. Mostly. Or those are the ones I notice.
But due to a v negative effect to an SSRI prescribed during a career change ( which clashes with the autistically wired brain and made me insane! Almost literally), in 2009 I saw my neurologist and said I would like to go drug free because of the mid to long term side effects of drug treatment.
He agreed with me…and we had a long conversation about philosophy where he recommended I read 7 years in Tibet and I recommended he read the Bhagavhad Gita (seriously…there is something about aspers that’s refreshing to those who think spiritually or philosophically…I never expect to have a conversation about it but people feel they can talk on a level with me!).
Anyway. I’m tired tonight and worked a long day so I was busy telling my viewers about my henna mix (hair dye), when my TLE struck. It happens when I rush or when I relax. Light, noise and reading can aggravate it. So I take care to minimise risks. I take valerian root and wind down for a few hours before bed. Wear sunglasses in the bedroom etc.
But fluke of flukes, just had one when I was recording. This is interesting to me. I notice my hand goes to my head like it hurts. It doesn’t hurt. It feels like white noise explosion in the brain. But I don’t fall, I don’t slur, I don’t forget what I am saying even though I go off at a tangent. Most importantly, if I hadn’t told the viewers I was having one, you wouldn’t have known.
Which is why until I had a big seizure, no one knew I had epilepsy!
Listening back to it, I do notice I pause between words increasingly before I have the seizure. And in this tired state, I move my head a lot as if focusing my eyes is uncomfortable. Which it is. And which is usually my cue for a Hepburn treatment (oversized sunglasses indoors).
I am going to post this for epilepsy awareness. Epilepsy doesn’t carry the stignma it once did. For some reason people with aspergers are more likely than average to have epilepsy. Also, sometimes people grow in and out of it.
My autism and epilepsy would be considered disabilities by some. I don’t feel that way about them. Some people have stinky feet and cake addictions…far more debilitating! Also allergies…much worse. So I don’t consider my autism or my epilepsy as disability. Some people have bad manners…surely, that’s worse!
So, I am posting this up with the seizure included for people who don’t know about epilepsy (or henna). Not all epilepsy is grand mal seizures with thrashing about and blue lips. And not all petit mal seizures are the same! I can talk when mine happen but usually can’t see!
I could write more…but I don’t want to write a medical journal article. I just thought maybe it would be informative. If I have never seen myself have a partial seizure before, I expect most people haven’t seen me have one. So it’s sort of interesting…but also may help you understand a bit more about epilepsy in general.
Plus…anything about natural beauty products like henna powder and coconut oil are interesting in a whole different way! So there’s something for everyone!
And also, now you know why I wear sunglasses in the house at night. I am of course, that cool! But they serve a function too!