Tag Archive | epilepsy

The Best Day…dedicated to my dad | Brain Cancer Awareness

image

The cover that proves…yes…#highfunctioningautism doesn’t mean you don’t have emotions!

https://youtu.be/utF4-JJiRdc

Song begins at about 6 mins 30…intro poss not a good idea b/c I start crying b4 I finish it! But the 2nd take which runs straight afterwards, was ok.

Not sure about the recording…sang in my natural voicd but sound a bit off key in places and on my bluetooth speaker the backing track sounds too loud for my voice! But it is just me with a speaker playing the backing track and singing at the camera with no edit.

Song is #thebestday by #taylorswift on #asmr #whisperingwitch channel (info on that is in the info in the dropdown below the video)…& I go on to explain why I was moved to tears first time round!

Dedicated to my dad ♡ who died in September. Photo is of me with dad…who wanted me to promo cancer awareness and using #energyhealing (which I teach online through http://www.mayastar.net) and #reiki to assist transition and symptoms even in terminal cases or while someone is in the “active phase of dying).

It can he used to help relax, reduce symptoms in some cases and help smooth the emotional journey…for the patient and those around them if they are receptive. It also helps loved ones to feel they are able to do something to help and that can be important later to reflect on.

At the time this photo was taken dad had only a few months to live. As you can see…he didn’t look like he was dying. Didn’t actually look like he was 67 either! But at this stage he was on #chemo. He had a numb area on his face and gradually that spread. His death came quicker than expected (the younger you are the faster cells replace and the faster some types of tumour can grow).

Advertisements

Oops! While making a vid about Henna, I had a seizure! If you are curious what a TLE seizure may look like…please check it out! (I haven’t seen myself have one either – so it was interesting for me too!)

image

Unusual mini vid tonight!

I have temporal lobe epilepsy (TLE).

I was referred for brain scans and tests and prescribed drugs after having a few grand mal/tonic clonic seizures. But found out I had many petit mal partial seizures.

They can affect me in different ways but don’t appear seizure like to anyone watching. I lose my ability to understand what I see. Or I lose my short term memory. Mostly. Or those are the ones I notice.

But due to a v negative effect to an SSRI prescribed during a career change ( which clashes with the autistically wired brain and made me insane! Almost literally), in 2009 I saw my neurologist and said I would like to go drug free because of the mid to long term side effects of drug treatment.

He agreed with me…and we had a long conversation about philosophy where he recommended I read 7 years in Tibet and I recommended he read the Bhagavhad Gita (seriously…there is something about aspers that’s refreshing to those who think spiritually or philosophically…I never expect to have a conversation about it but people feel they can talk on a level with me!).

Anyway. I’m tired tonight and worked a long day so I was busy telling my viewers about my henna mix (hair dye), when my TLE struck. It happens when I rush or when I relax. Light, noise and reading can aggravate it. So I take care to minimise risks. I take valerian root and wind down for a few hours before bed. Wear sunglasses in the bedroom etc.

But fluke of flukes,  just had one when I was recording. This is interesting to me. I notice my hand goes to my head like it hurts. It doesn’t hurt. It feels like white noise explosion in the brain. But I don’t fall, I don’t slur, I don’t forget what I am saying even though I go off at a tangent. Most importantly, if I hadn’t told the viewers I was having one, you wouldn’t have known.

Which is why until I had a big seizure, no one knew I had epilepsy!

Listening back to it, I do notice I pause between words increasingly before I have the seizure. And in this tired state, I move my head a lot as if focusing my eyes is uncomfortable. Which it is. And which is usually my cue for a Hepburn treatment (oversized sunglasses indoors).

I am going to post this for epilepsy awareness. Epilepsy doesn’t carry the stignma it once did. For some reason people with aspergers are more likely than average to have epilepsy. Also, sometimes people grow in and out of it.

My autism and epilepsy would be considered disabilities by some. I don’t feel that way about them. Some people have stinky feet and cake addictions…far more debilitating! Also allergies…much worse. So I don’t consider my autism or my epilepsy as disability. Some people have bad manners…surely, that’s worse!

So, I am posting this up with the seizure included for people who don’t know about epilepsy (or henna). Not all epilepsy is grand mal seizures with thrashing about and blue lips. And not all petit mal seizures are the same! I can talk when mine happen but usually can’t see!

I could write more…but I don’t want to write a medical journal article. I just thought maybe it would be informative. If I have never seen myself have a partial seizure before, I expect most people haven’t seen me have one. So it’s sort of interesting…but also may help you understand a bit more about epilepsy in general.

Plus…anything about natural beauty products like henna powder and coconut oil are interesting in a whole different way! So there’s something for everyone!

And also, now you know why I wear sunglasses in the house at night. I am of course, that cool! But they serve a function too!

Watch “Intro ASMR Whispering Witch Nocturnal Chat | TLE, Aspergers, Autism, Magick, Spells, Relaxation” on YouTube

https://youtu.be/dNPMSkX5q9I

PLEASE wear headphones! (straining to hear a computer speaker isn’t relaxing!)

A proper introduction to my channel…what inspired me…how I hope it will work…etc. Please forgive the bumpy beginning of the vid while I messed with the lighting etc! XX

I have Aspergers (a type of high functioning autism) means I’m more comfortable using ASMR “whispered conversation”. The mutual increased focus this initiates allows a more intimate communication & natural connection. My intention is to use whispered conversation to provide a unique & informal style that will be relaxing to watch, pleasant to hear & with subjects accessible to viewers.

I plan to upload various vids; some may be general or personal updates; others may be more informative, based around my spiritual & magickal work;  general chats & reviews. Also, ‘streams of consciousness’…with no fixed ‘subject’.

I keep a blog and do find editing it a problem; I have too many thoughts and my edits tend to get longer not shorter! I am hoping making vids will allow me to address some of the blog ideas I have that are responses questions from people.

My nifty little camera will allow me to make a 15 minute video (with good sound!) and upload it to YouTube from my bedroom…very handy and should help with covering more topics or answering more specific questions…as well as regular chit chat vids.  I really want to keep the content variable, but with a theme that I’m comfortable working in!

Please be aware, I have photosensitive epilepsy and when it gets late and I’m winding down, sometimes this affects me so I tend to wear sunglasses indoors. I’m aware this looks kind of weird! But it means I don’t need meds to control seizures so, I don’t mind wearing sunglasses!

NOTE: Although Whispering is used in ASMR, I use this technique because it is more comfortable for my autism & is a natural part of my night when I’m winding down for bed!

Anna Louise May | Random Updates | Heels | Lighting | Teddy Boys | Silliness | Unicorn | Nights at the Opera | Motown | Spells & Work

image

Random updates…

Spent my evening sorting out stuff so my #dancestudio can convert to a (rudimentary) bedroom so when my brother visits he doesn’t have to clock watch. And sorting out the rest of the new #ledbulbs – for #energysaving & #moodlight effects that don’t mess w/ my #epilepsy.

It was a bit too late for paperwork by then…so I sent this pic to my #TeddyBoy to ask if he wanted a bath 🙂 It was my fave of the silly pix I sent as it not only includes my most spectacular #sparkly #swarovski #stilettos (my black velvet #gothic #princess #heels) but Lux the #Unicorn & #psychadelic lighting conspired to show my #delicate #ankles & my strong #ballet trained feet feet off perfectly. It’s all just soooo me.

So, me & spider had a bath…ate cold #pizza, watched #GhostHunters & spent a “night at the opera”, listening to #motown.

Perfect.

Tonight I will really have to #henna my roots, tint my eyebrows & eyelashes (I look so unkempt to myself!) & do my admin work for Mayastar Academy. Two #spells for #MayaMagickal – one reversal (as a preliminary working for a #prosperity working) and one #ArchangelMichael #ProtectionSpell.

Today’s fave 3 things…#pets, #chanel no19 and my #bellicon #rebounder!

www.annalouisemay.net FB
www.maya.mayastar.net FB
www.mayastar.net
www.mayamagickal.net
www.mayarunes.net
www.wordpress.annalouisemay.net

Anna Louise May (Maya) | Mystic Muse & Artist

Bathtime Blogger | Pre-Raphaelite | Hippie | Boho Princess | Ballet Dancer | Vegan | Psychoanalyst | Aspergirl | TLE | Indigo Child | Mixed Media Artist | Muse & Model | Poet | Spiritual Facilitator | High Priestess & Witch Queen | Chaote | Reiki Master

Mayastar Academy Online Natural Energy Healing & Spiritual Development Courses | Magickal Initiation | SpellCasting | Psychic Readings

http://www.annalouisemay.net FB
http://www.maya.mayastar.net FB
http://www.mayastar.net
http://www.mayamagickal.net
http://www.mayarunes.net

Request info pack by email from http://www.mayastar.net@gmail.com

Please follow, share, comment & enjoy ♡

Energy Healing | Reiki | Holistic Health

This blog is taken from a discussion with a student who has undiagnosed and intermittent stomach pain and has previously assumed this to be an “energy block” and based on that has not pursued any clinical diagnosis.

I always emphasise the importance of taking a holistic view of health and wouldn’t recommend anyone self diagnose with “an energy block” and to seek no further clarification from appropriate professionals.

I teach energy healing & meditation techniques as well as providing magickal solutions (based on karmic reweaving)…these are complementary and not alternatives to medicine, lifestyle choices, diet etc.

A holistic approach means taking on board all aspects of health and diagnosis.  Energy healing isn’t an alternative to medical. And for full health a body needs balance physically, mentally, emotionally and spiritually. If you are eating badly, don’t take any exercise, have a stressful lifestyle or habits you know are compromising your health and wellbeing, it’s not reasonable to turn to learning energy healing and meditation as an alternative to resolving problems with practical solutions. No amount of chanting will remove a ruptured appendix…and no one would expect it to. So if you have health problems you really should see a health care professional.

If you wish to use my services magickally or in energy work to progress towards a harmonious state, that’s excellent and exactly what my work is for. But if you think magick can provide a quick fix or meditation can cure all ills while you continue to make choices you know are causing you harm (such as drinking, taking drugs, unhealthy eating or unhealthy habits of lifestyle such as letting your ego dictate your course in life and causing your conscience to blanch at your own behaviour and choices), magick, meditation and energy healing won’t fix it. If you don’t genuinely want to change you won’t change. And although meditation, ritual or energy work may assist you, may increase your self awareness and support you in making progress, they aren’t there to make you magickally transform into something else against your will!

If someone has health problems (physical, mental or emotional), I would not assume to make a diagnosis as I am not qualified to.  So if you’re ignoring something, find out what it is from someone qualified, before you decide for yourself what you think it is and how you think you should treat it!

The student hadn’t contacted me about health problems beforehand…and I don’t think they can have read the Mayastar Study Manuals that accompany the courses I teach otherwise they would have known that my response would be to reiterate what I teach. A genuinely holistic approach…not a bunch of new age fluff bunny nonsense. I think people that do (and I have had to re-teach Reiki to people who received no real guidance or study materials from “Masters” so many times now that I consider the fluff bunny nonsense approach to be both epidemic and dangerous) are causing untold harm and not embracing the holistic view at all.

If you feel the energy healing is exacerbating a condition I would advise not to use it until you have seen a medical professional that can ensure you are safe to do so.

Also, it is important to ensure you have grounded yourself with the grounding meditation before and after each session – and read the Study Manuals fully.

If you have pursued the advice of a medical professional and your digestive problems perisist without an apparent cause, look at other areas of your lifestyle. Maybe seeing a nutritionist would be indicated. If stress causes the problem maybe a different kind of energy work would be more suitable.

If you feel grounding or long term imbalance are a significant component in your work there are options like the Avalonian Trilogy Meditation that can help you balance out and would be suitable for reducing stress.

Also there are ritual options. The healing/grounding effect of the Killing Moon 30 Day Karmic Reversal Ritual can be helpful; it has a very healing and grounding effect and depending on the source of the imbalance may significantly improve it or eliminate it. The same goes for the Light Body Activation Initiation Intensive. These are detailed on the Maya Magickal website (links below).

But I really recommend against considering these options as alternatives or to self diagnose a problem without any professional advice. You could be causing harm to yourself by doing so.

So although any problem could be helped with energy healing or meditation, it could also be exacerbated with the wrong kind of energy or by using techniques incompletely (particularly neglecting to follow the instruction onn grounding!).

Stomach complaints that are ongoing should be seen by a physician. Diary products can exacerbate underlying conditions – or be the cause of them. A lack of exercise can cause problems with digestion. Food allergies or intolerance could be aggravated by stress. But at the same time, persistant problems may indicate a chronic condition that requires medical diagnosis and may be better helped with professional medical care. Your assumption that it is an energy block may be right but unless you see someone qualified to rule out potentially serious conditions such as diverticulitis, hernia or colitis, your self diagnosis could be dangerous.

When we work holistically we don’t assume all problems are due to energy blocks when it’s also possible for a medical, dietary or lifestyle condition to cause similar symptoms. And unchecked a medical condition can result in an energy block – but to treat that it would be advisable to take a holistic view and treat it on all levels. Which includes medical.

It may not be a serious condition or it may be one you can manage without medication too. IBS for example. In that case energy healing and meditation may be very helpful!

To end with an anecdotal point…over the years (decades) I have worked with attunement based energy healing and meditation systems, as my natural “basal vibrational frequency” has shifted, I have noticed I can’t tolerate caffeine very much. I can’t eat meat or sugar or drink alcohol because they have a very grounding effect on me. Something I became aware of as my natural sensitivity increased. I also gave up smoking 9 years ago. And recently gave up dairy as what I had thought was a bit of an intolerance began to cause histamine swelling in my hands (an allergy rather than an intolerance). People’s bodies change over time and often people naturally change their habits based on those changes…but if I hadn’t decided to go vegan I might have irritated my body with more dairy products and ended up with more serious problems.

 

Other anecdotal situations – my mother gave up sugar and her IBS went away (but her hernia required medication and surgery and changing her diet wouldn’t have fixed that! ). I used to get migraines and have hay fever as a child but somehow at some point grew out of them. Whereas my brother grew into getting migraines in his 30s having never had one before. So people’s bodies change and it’s sometimes something you have to learn to manage – my brother made significant lifestyle changes to reduce to risk of migraine.

Additionally, I have temporal lobe epilepsy and I make significant lifestyle based choices to manage it because after discussing with my neurologist he was happy for me to try a drug free route. But over time, my epilepsy may change and I will change with it. (It’s why in so many selfies I’m wearing sunglasses in fact – I am light sensitive and sometimes wear them before bed because I tend to have more as I start to relax otherwise). But I would rather keep sunglasses by my bed than take a chemical preventative medication that has long term side effects. However, it was important I saw my GP about and had scans and tests and got a proper diagnosis before discussing my options with someone who knows about TLE. Because the very same symptoms might have indicated a tumour or a stroke. So it’s very important I think that if you’ve self diagnosed a problem you have had for many years, you see a professional and make sure you’re making choices based on the facts.

I think many people on a spiritual journey find that as they raise their energy, their intolerance to low energy vibes (from food, people, music or habits) becomes highlighted and that’s part of the journey in a way. But that shouldn’t be used as a reason to boycott the facts or (in some cases), our own common sense!

So have a look at the options. Consider your symptoms. Think about your diet and lifestyle to see if they offer up any clues. And speak to a GP for advice. If energy healing doesn’t feel right, perhaps a structured meditation system might suit you better in managing stress for example. But please ensure you seek appropriate professionals…a holistic view means working with the whole x

www.mayastar.net
www.mayamagickal.net
www.mayastar.net/aap.htm
www.mayamagickal.net/killingmoon.htm
www.mayarunes.net
www.facebook.com/mayastaracademy
FB www.annalouisemay.net