Unusual mini vid tonight!
I have temporal lobe epilepsy (TLE).
I was referred for brain scans and tests and prescribed drugs after having a few grand mal/tonic clonic seizures. But found out I had many petit mal partial seizures.
They can affect me in different ways but don’t appear seizure like to anyone watching. I lose my ability to understand what I see. Or I lose my short term memory. Mostly. Or those are the ones I notice.
But due to a v negative effect to an SSRI prescribed during a career change ( which clashes with the autistically wired brain and made me insane! Almost literally), in 2009 I saw my neurologist and said I would like to go drug free because of the mid to long term side effects of drug treatment.
He agreed with me…and we had a long conversation about philosophy where he recommended I read 7 years in Tibet and I recommended he read the Bhagavhad Gita (seriously…there is something about aspers that’s refreshing to those who think spiritually or philosophically…I never expect to have a conversation about it but people feel they can talk on a level with me!).
Anyway. I’m tired tonight and worked a long day so I was busy telling my viewers about my henna mix (hair dye), when my TLE struck. It happens when I rush or when I relax. Light, noise and reading can aggravate it. So I take care to minimise risks. I take valerian root and wind down for a few hours before bed. Wear sunglasses in the bedroom etc.
But fluke of flukes, just had one when I was recording. This is interesting to me. I notice my hand goes to my head like it hurts. It doesn’t hurt. It feels like white noise explosion in the brain. But I don’t fall, I don’t slur, I don’t forget what I am saying even though I go off at a tangent. Most importantly, if I hadn’t told the viewers I was having one, you wouldn’t have known.
Which is why until I had a big seizure, no one knew I had epilepsy!
Listening back to it, I do notice I pause between words increasingly before I have the seizure. And in this tired state, I move my head a lot as if focusing my eyes is uncomfortable. Which it is. And which is usually my cue for a Hepburn treatment (oversized sunglasses indoors).
I am going to post this for epilepsy awareness. Epilepsy doesn’t carry the stignma it once did. For some reason people with aspergers are more likely than average to have epilepsy. Also, sometimes people grow in and out of it.
My autism and epilepsy would be considered disabilities by some. I don’t feel that way about them. Some people have stinky feet and cake addictions…far more debilitating! Also allergies…much worse. So I don’t consider my autism or my epilepsy as disability. Some people have bad manners…surely, that’s worse!
So, I am posting this up with the seizure included for people who don’t know about epilepsy (or henna). Not all epilepsy is grand mal seizures with thrashing about and blue lips. And not all petit mal seizures are the same! I can talk when mine happen but usually can’t see!
I could write more…but I don’t want to write a medical journal article. I just thought maybe it would be informative. If I have never seen myself have a partial seizure before, I expect most people haven’t seen me have one. So it’s sort of interesting…but also may help you understand a bit more about epilepsy in general.
Plus…anything about natural beauty products like henna powder and coconut oil are interesting in a whole different way! So there’s something for everyone!
And also, now you know why I wear sunglasses in the house at night. I am of course, that cool! But they serve a function too!
New YouTube Channel:
ASMR/Quiet Talking bedroom chitchat from the Whispering Witch!
I am an Aspergirl, Blogger, Lightworker & Modern Mystic.
My Aspergers (a type of high functioning autism) means I’m more comfortable using the ASMR “whispered conversation” method. The mutual increased focus this initiates allows for a more intimate communication & natural connection.
My intention is to provide a unique, relaxed & informal style for viewers.
If you are new to ASMR pls give it a chance…at first it may seem odd but it’s a wonderful method of having a heart to heart “vibe”. I also recommend headphones.
I teach online energy healing, meditation & spiritual development courses, so I plan to cover related subjects as well as hobbies, reviews & personal updates.
I hope you will enjoy!
@annalouisemay on Tumblr, Flickr, Blogger, WordPress, G+, Instagram & Twitter
PLEASE wear headphones! (straining to hear a computer speaker isn’t relaxing!)
A proper introduction to my channel…what inspired me…how I hope it will work…etc. Please forgive the bumpy beginning of the vid while I messed with the lighting etc! XX
I have Aspergers (a type of high functioning autism) means I’m more comfortable using ASMR “whispered conversation”. The mutual increased focus this initiates allows a more intimate communication & natural connection. My intention is to use whispered conversation to provide a unique & informal style that will be relaxing to watch, pleasant to hear & with subjects accessible to viewers.
I plan to upload various vids; some may be general or personal updates; others may be more informative, based around my spiritual & magickal work; general chats & reviews. Also, ‘streams of consciousness’…with no fixed ‘subject’.
I keep a blog and do find editing it a problem; I have too many thoughts and my edits tend to get longer not shorter! I am hoping making vids will allow me to address some of the blog ideas I have that are responses questions from people.
My nifty little camera will allow me to make a 15 minute video (with good sound!) and upload it to YouTube from my bedroom…very handy and should help with covering more topics or answering more specific questions…as well as regular chit chat vids. I really want to keep the content variable, but with a theme that I’m comfortable working in!
Please be aware, I have photosensitive epilepsy and when it gets late and I’m winding down, sometimes this affects me so I tend to wear sunglasses indoors. I’m aware this looks kind of weird! But it means I don’t need meds to control seizures so, I don’t mind wearing sunglasses!
NOTE: Although Whispering is used in ASMR, I use this technique because it is more comfortable for my autism & is a natural part of my night when I’m winding down for bed!
Testing Camera for #ASMR/#QuietTalking | #Whispering #Witch | Bedroom Chitchat | #Aspergirl. First upload – short test of my new camera for ASMR suitability. Fab because I can upload straight to #YouTube from the camera! Not the best angle…and I was plainly knackered by the time of the test! But overall was pleased with the sound quality 😀 ♡
Pls visit…like, share, comment & follow my channel! Xx
Anna Louise May (Maya) | Mystic Muse & Artist
Bathtime Blogger | Pre-Raphaelite | Hippie | Boho Princess | Ballet Dancer | Vegan | Psychoanalyst | Aspergirl | TLE | Indigo Child | Mixed Media Artist | Muse & Model | Poet | Spiritual Facilitator | High Priestess & Witch Queen | Chaote | Reiki Master
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